A Revised First Source
- Copley, Margaret Freeman, and John B. Bodensteiner. “Chronic Sorrow in Families of Disabled Children.” Journal of Child Neurology, vol. 2, no. 1, 1987, pp. 67–70., doi:10.1177/088307388700200113.
Background: The author has collected and analyzed the psychological literature examining the Chronic Sorrow of parents who give birth to children with disabilities. She describes the ongoing grief—similar to the grief of parents whose child dies—caused by “the loss of an idealized normal child.” One parent reports that he and others suffer “months and years of anguish, roller coaster cycles of elation and depression as the parents try to deny the evidence before their eyes that their child is less than ordinary or normal.”
The effect on normal siblings is not described in this source, but is easy to imagine from what is described. “Parents cannot effectively mourn the loss of the idealized child because of the unrelenting daily demands of the living disabled child,” which will reasonably deprive them of the psychic strength to properly nurture their “normal” children as they deserve. And that will likely cause resentment in the siblings. Parents who feel “helpless, hopeless, and anxious” all the time, and who react with “anger, resentment, and aggression” to the frustration of their predicament will not parent as well as they should.
How I Used It: I used this article to establish that parents of a handicapped child are stunted in their ability to properly nurture their other children. Then, since the parents are grieving, I sought and found articles that address how the DEATH of a sibling affects the parent-child relationship with the survivors. Those healthy siblings suffer a loss of affection from their parents along with the burden of being the surviving child, of whom much more is expected and demanded.
2. Chien, Yi-Ling, et al. “School Functions in Unaffected Siblings of Youths with Autism Spectrum Disorders.” SpringerLink, Springer US, 6 July 2017, link.springer.com/article/10.1007/s10803-017-3223-0.
Background: This article is about the question of whether or not the normal child and handicapped child brother and sister relationship differ in any significant way from children in any other non-handicapped brother and sister relationship.
How I used it: This article proves that growing up with a handicapped brother and sister can have some differences in the house and in school or public.
3. Hartley, S., et al. “How Do Carers of Disabled Children Cope? The Ugandan Perspective.”Child: Care, Health and Development, Blackwell Science Ltd, 16 Feb. 2005, onlinelibrary.wiley.com/doi/10.1111/j.1365-2214.2004.00464.x/full.
Background: This article describes caring for a disabled family member generally falls on one person sometimes two, specifically females. Male members of the family such as father or uncles usually control the key decisions concerning the child and the associated resources.
How I used it: This article proves that most care providers are woman as nurtures.
4. Franklin, Anita, and Patricia Sloper. “Participation of Disabled Children and Young People in Decision Making Within Social Services Departments: A Survey of Current and Recent Activities in England | The British Journal of Social Work | Oxford Academic.” OUP Academic, Oxford University Press, 10 Oct. 2005, http://www.academic.oup.com/bjsw/article-abstract/36/5/723/1645153/Participation-of-Disabled-Children-and-Young.
Background: This article is an investigation concerning the participation of disabled children within decision-making regarding their own care and in service development. Such as care given to them in the home and care provided to them from a provider.
How I used it: This article proves, if possible the disabled should be a part and current when decisions are made about their care options.
Background: This article is a survey between parents of handicapped and non handicapped children and in difference in how they develop symptoms of depression.
How I used it: This article proves that being a parent can be stressful but being a parent of a disabled child causes excessive stress.
6. Strawbridge, William J. 1940-. “The Effects of Social Factors on Adult Children Caring for Older Parents.” University of Washington Libraries ResearchWorks Service, 1 Jan. 1991, digital.lib.washington.edu/researchworks/handle/1773/8869.
Background: This article is a test to evaluate the physical and emotional state of caregivers, caring for a disabled person. The results show that they have a poor mental health themselves causes by stress and family conflict.
How I used it: This article was the extra information I needed to prove that being a caregiver is not easy. I used it to emphasize that being a sibling care giving requires time and patience.
7. Featherstone H: A difference in the family, in Living With a Disabled Child. New York, Penguin Books, 1980, pp 232, 233.
Background: This article is about the community-based rehabilitation (CBR) in Uganda. It was created by the World Health Organization in 1989 to help families cope with taking care of a disabled family member and helps to improve the utility of life of the disabled and their family.
How I used it: This article helped me in my writing to explain various programs that help families with disabled children.
8. “Understanding emotions in others: mirror neuron dysfunction in children with autism spectrum disorders” https://www.nature.com/articles/nn1611
Background: This article goes into great detail about the autism spectrum and what it actually is. It also discusses other mental illness children may be diagnosed with.
How I used it: I used this article to help me have better understanding of the definition of each mental illness.
9. Reichman, Nancy E., et al. “Impact of Child Disability on the Family.” SpringerLink, Springer US, 1 Dec. 2007, link.springer.com/article/10.1007/s10995-007-0307-z.
Background: This article is about the relationship between the parents and children, their living arrangements whether they need special accommodations for the disabled child and relationships with other extended family members and the children.
How I used it: I used the article to explain how taking care of the disabled and they responsibilities that come with it may fall on extended family members.
10. “Mothers Who Care.” Journal of Family Issues, journals.sagepub.com/doi/abs/10.1177/019251391012002005?legid=spjfi%3B12%2F2%2F211c12%2F2%2F211r12%2F2%2F211p12%2F2%2F211c12%2F2%2F211p12%2F2%2F211.
Background: This article is about mothers who care about the process of care of their children as they get older. It also explores that women are the dominant sex when it comes to being a care giver to a family member.
How I used it: I used this article in to explain my personal experience with only women being care givers in my family.